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Friends as Artists: Jesse White

Following being an intern for the Quaker Aging Resources Support Group, Joey Szpilczak was invited by Sheila Sorkin, PYM Aging Support Coordinator to meet with friends who were open to discussing their artistic journey and connection to spirituality and aging. Joey shared her excitement to speak with friends and hear their perspectives! Several friends are members of Home – Fellowship of Quakers in the Arts (FQA) which began by members of PYM. Included in this article, Jesse White is both a member of FQA and a former Clerk of the FQA Board. Joey developed the following questions when interviewing friends. Jesse’s responded directly to those questions. Below you will see their stories and art.

1.What is your artistic practice or passion, and what draws you to it?
I am a Narrative Expressionist visual artist and writer. It is important to me that my work tells a story that makes the viewer/reader feel. Stories are powerful medicine and gifting an emotion is how we find empathy and connection. My favorite mediums to work in are oil painting, altered book arts, and poetry. I also love tapestry and circular weaving, and playing the piano. My life callings are to create, to teach, and to heal.

2. How did you come to both Quakerism and your creative practice?
When I was four, I started attending Frankford Friends School. My emotions were too big for me—I was easily overwhelmed, always anxious, and usually panicked. I cried every day, not because I hated school but because I couldn’t find peace in all my big feelings… until we practiced silence. Silence took the edge off. I was still nervous that I would accidentally make noise and disrupt the peace, but with enough time I rested in it, and it rested in me. I told my mom there was school on Sundays. She corrected me but I insisted, “there is First Day School and we are going.” We never signed the guest book at Frankford Friends Meeting. We were already home.

First Day School was an opportunity to connect that peace I felt in silence with creativity. There were artists as First Day School teachers and learning art techniques was also a way to experience the magic (mysticism) of God. I was five when I first heard the voice of God through messages in community worship at PYM annual sessions. Someone shared song lyrics that were meaningful to her and later, out of the silence, someone else was moved to sing the song. I cried, but this time for the beauty of God’s voice.

3.How does your Quaker faith and your creative practice inform each other?
My faith and creativity have always been united. As a mystic, I find a liminal space within me between what is human and what is divine. I find that simple prose cannot fully capture the beauty and grace of God. Poetry casts a web that can capture the meaning of the Divine’s messages and visual art shares God’s messages through me to you without the small containers of words. At Guilford College, where I was first pursuing education towards becoming an expressive arts therapist, I was called to include my faith into my learning. I was able to do this through the Quaker Leadership Scholars Program and through pursuing an Integrative Studies degree in “Creative and Spiritual Process” in addition to my Psychology degree. My ministry has connected Arts and Spirituality with teaching and healing since that time. I worked at Pendle Hill as the Arts and Spirituality Coordinator for many years. Presently, I serve as the Director and Transitional Life Coach (through creativity and interfaith spirituality) for Pigeon Arts (pigeonarts.org).

4. Has the relationship between your art and your faith shifted throughout your life? How have these practices changed your understanding of yourself and of community?
My creative expression has always an essential part of being in relationship with Spirit. As young children each of us was a creative genius. We are conditioned out of understanding ourselves as creative through educational grading systems and social pressures. I deeply want Friends to witness their own creativity (if not in the arts, then in cooking, gardening, problem-solving, creating safe spaces, waiting together for new ideas to emerge out of waiting worship…). Creativity is a path to discernment, to following a leading, to living into the Beloved Community we want to see.

Additionally, I believe that there are as many paths to and with God as there are beings. I strongly believe that each of us can hear Spirit’s leadings and callings if we practice deep listening and discernment. My Quaker faith is augmented by my creativity, and Universal Shamanism and Tarot practices. I’ve known Jewish Quakers, Buddhist Quakers, and Muslim Quakers who maintain deeply personal and transformative relationships with God. It is important that we use the spiritual language that resonates most deeply with our own experiences, and to truly hear the spiritual messages in the words of others (instead of getting stuck on spiritual language that is not our own.) This is a path to peace.

5. Is there a piece you made that you feel most directly emerged from your spiritual life?
I’ve been journaling through poetry since I was seven years old as a direct conversation with myself and with God. My visual art is almost always an extension of Spirit’s work through me. I am happy to share an image of my large painting entitled “streetlampdancer” that moved through me. In the image a young girl dances at night in the rain beneath the light of a street lamp. All around her the world carries on—the rain, the chain link fence, the bird on the wire, her lost shoe, the barking dog, the neighbor shouting to get her tush back home—yet she is in bliss, mesmerized by her dance and the Light.

Jessie White, Alternate Clerk of former Frankford Friends Meeting Monthly Meeting, currently Frankford Executive Meeting

Director and Spiritual Arts Doula, Pigeon Arts pigeonarts.org

Spiritual Approach to Dementia Care

Q: How do we nurture life as Friends for those experiencing dementia or other cognitive changes?

Q: How can we support that of God in one another in the face of cognitive, emotional and behavioral challenges?

What is Dementia? Dementia is not a specific disease, but a group of brain related symptoms that cause changes in intellectual and social functioning. Alzheimer’s disease is one cause of dementia. A symptom of dementia is memory loss, but not all memory loss is dementia. Dementia may progress in different ways; your health practicioner may be able to tell you what to expect if you or a loved one have dementia, but situations vary.

Someone with dementia may forget where they are, how to care for themselves, or what to do with everyday objects. They may feel frightened, and even suspicious. Friends and family may not know how to communicate, comfort or be with the person in the ways they are used to being together. The following points may help you cope and make connections.

  • The term “memory loss” actually refers to a loss of the ability to access memories, not the loss of memories themselves. Still, this is a significant loss to a person experiencing it and their loved ones. Allow yourself to grieve and validate the loss you feel. This will help you learn to cope with changes you are experiencing and/or to be with your loved one in a meaningful way.
  • Sometimes old pictures, familiar places, smells or music can help a person access memory, and when that happens, enjoy! However, testing or criticism when a person can’t remember does not help and may create even more confusion and frustration. You can find comfort by being beside your friend or family member “in the moment”, appreciating life and beauty that is present. Sensory experiences such as enjoyable smells, tastes , sights and sounds do not require memory to be appreciated.
  • The essential spirit of a person is not lost, a person with dementia can feel and express love, compassion, humor, anger, wonder and grief. They can feel lonely or isolated when not included, as anyone can. Those who work with people even in late stage dementia have observed communication and acts of kindness that transcend words.
  • Think in universals- Someone who is grieving or angry needs to be recognized and validated, even if we are not quite sure why. We all need opportunities to give – perhaps through a familiar task such as rolling pie dough or chopping vegetables, holding a baby, petting a dog. Life has much to offer right outside our door, and someone with dementia can remind us to pay attention to sparkling pavement, bird calls, a magnificent sky, or everyday things that are inherently strange or funny. Marvel.

Essential Skills for Dementia Care: Daniel Kuhn and Jane Verity in The Art of Dementia Care*, cite these essential skills in caring for someone with Dementia:

  • Empathy
  • Respect
  • Playfulness
  • Encouragement
  • Love
  • Understanding

“Live in love and learn from one another.”
PYM Faith and Practice, 2002

More Tips for being present with Friends who are experiencing dementia because of Alzheimer’s disease or other conditions:

  • Even if the person does not seem engaged , remember they are present–always include the person in your dialogue.
  • Approach from the front with a friendly smile and eye contact.
  • Use the person’s name to get their attention, and give them your attention, undivided.
  • Be aware of your own body language—try to be relaxed and open
  • Speak clearly and slowly, but using adult words—do not patronize
  • Always validate feelings.
  • Remember that another’s reality may not be yours. Try simply to be with the person in acceptance and love. Correction of facts may only lead to frustration.
  • Talk about things present—the sky, her dress, the flowers .Accept that you need to repeat yourself, remember that a person with short term memory loss will often forget something very quickly after hearing it.
  • Listen with loving kindness to what the person is repeating. Listen for a need they cannot express, a story they need to tell. Listen with your heart, even if you have trouble understanding their words.
  • If you have trouble seeing past what has been lost, try for a moment to focus lovingly on one beautiful thing about the person—their laughter, their hands, the color of their eyes. This may help ground you to be present with the essential spirit of the person you are accompanying.

“Let the Friendly Testimony that there is that of God in everyone lead us to cherish every human being…”*
PYM Faith and Practice, 2002

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LINKS TO MORE INFORMATION: Click on the blue text below to be directed to outside websites that offer additional information on this topic. Articles from this site will open in the same browser window/tab. Articles from other websites will open in a new window; when you are done, simply click out of that window and you will be back on this site.

More articles on this website:

Anxiety and Change
Care of the Caregiver

Other articles/links:

Reaching Out to the Spiritual Nature of Persons With Dementia, Annual Meeting of NCOA/ASA 2008 at Baylor College

Sources/Further Reading:

Robin Cruise, Illustrated by Stacey Dressen-Mcqueen, Little Mama Forgets, 2006 Melanie Kroupa Books, New York, NY. (A multigenerational picture book)

* Daniel Kuhn and Jane Verity, The Art of Dementia Care, 2008, Thomson Delmar Learning, Clifton Park, NY.

John Zeisel, PhD, I’m Still Here, 2009, Penguin Group, New York, NY.